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EBMT 2018

Bright Red recently provided funding to Dr Nuno Borges, enabling him to attend the 44th annual meeting of the European Society for Blood and Marrow Transplantation (EBMT) in Lisbon, Portugal. Here, Nuno was able to present his abstract on the impact of cell doses on bone marrow transplant outcomes at Newcastle.

Nuno said “This was a fantastic opportunity to learn about cutting edge developments in the field of bone marrow transplantation, as well to network with some of the top names in haematology in the world.

The four day conference included a range of talks and presentations. The ‘meet the expert’ sessions gave delegates the opportunity to have a one on one discussion with an international transplant expert and learn about how they manage their patients. The advent of CAR T cells carries new hope to patients with leukaemia and lymphoma, as trials show promising results. The subject of minimal residual disease (MRD) was also a hot topic, with a growing body of experts making use of it to guide treatment of patients with leukaemia and, more recently, myeloma. Multiple talks and posters were dedicated to conditioning, with much ongoing debate into how best to prepare patients for transplant and also to balance the fine line between transplant related mortality and disease relapse. Complications in the post-transplant period are still a significant problem, and a large number of speakers presented their work on how best to prevent and manage them.

A considerable proportion of the talks was dedicated to discussing the psychological impact of bone marrow transplant on patients and their relatives, emphasising the need for them to have the appropriate level of emotional support during this process. Equally, the EBMT nurses group ran parallel sessions looking into the challenges of nursing for this group of patients, and how best to improve their experience of the transplant process.

Interestingly, I was surprised by how haematology treatments can reach out to other specialties. One session focused on bone marrow transplants for patients with auto-immune conditions, such as multiple sclerosis and inflammatory bowel disease. For patients who qualify, results seem to be quite impressive.

This experience has been an excellent opportunity for me to develop my knowledge in the field of bone marrow transplantation and further my interest in haematology as a specialty. This was made a possibility with generous support from Bright Red, thanks to whom I can now better understand and support the treatment of patients undergoing a bone marrow transplant.”

Dr Nuno Borges with his poster presentation.

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The Banks Group Select Bright Red As 2018 Charity Of The Year

Staff at North East property and energy firm The Banks Group have chosen to adopt a regional cancer charity as their new dedicated fundraising cause.

Having raised £12,000 for The Alzheimer’s Society last year, employees at the Durham headquartered, family-owned firm have now voted to raise money for Bright Red throughout 2018.

Bright Red supports people across the north of England who are dealing with a wide range of blood cancers, such as leukaemias, lymphomas and myelomas, as well as other less common conditions.

It was nominated by David Wilson, a member of the company’s ICT team who was diagnosed with multiple myelomas in 2014 and subsequently treated at the Freeman Hospital in Newcastle, where Bright Red is headquartered.

David, who is from Darlington, received two successful bone marrow transplants in 2015 and is now in clinical remission. He has since done his own fundraising work in support of Bright Red, collecting around £1,000 so far.

He says: “Bright Red’s work has a direct impact on the patients in the ward where I received my treatment, where many of them have to spend considerable lengths of time in isolation, and they’ve been responsible for the refurbishment and improvement of a lot of its rooms.

“Creating a better environment can improve patients and their families’ experience at what are obviously very difficult times, and the fundraising work I’ve previously done was a small way of saying thank you for the difference it made to us.

“Having my colleagues choose to support Bright Red this year is fantastic news, and we’ve already spoken to them about a couple of new project ideas that this fundraising drive could help them bring to fruition.”

Bright Red works to help create the best possible treatment environments for patients with blood cancers and their families, to assist in the education of healthcare professionals who focus on treating these conditions and to promote world-leading research into the treatment of leukaemia, lymphoma, myeloma and bone marrow failures.

Care grants are awarded to projects taking place in any haematology unit across the region which will have a positive impact for many patients, such as the long-term funding of a Bright Red Outreach at the Northern Centre for Cancer Care, while Lee Robson Patient Care Grants, which are named in memory of the charity’s first ambassador, are one off monetary awards given to patients in most need of financial assistance.

Staff from across Banks’ different businesses and locations will be undertaking a range of fundraising activities throughout the year, such as workplace lunches, dress down days, raffles and cake bakes, as well as participation in a number of different sporting and activity-related challenges.

More than £50,000 has been raised in total over the last five years for the Banks employees’ chosen charities, which have also included The Tiny Lives Trust, Leukaemia & Lymphoma Research and Integrating Children.

Sara Ellis, who is a member of The Banks Group’s charity fundraising committee, adds: “The types of blood cancer that Bright Red focuses on impact on the lives of thousands of families across our region, and the charity’s work is invaluable both to them and the medical staff leading the drive to find ever better treatments.

“Our employees always give their whole-hearted commitment to the good causes that they choose to adopt, and we know that the fundraising activities that are lined up so far for 2018 will be extremely well supported.”

Mark Thompson, chair of Bright Red and chief executive at Ryder Architecture, says: “Everyone at Bright Red is over the moon to be embarking on a partnership with The Banks Group team.

“As a relatively small, regional charity we heavily rely on the goodwill of the local community, so to receive support from an organization as well regarded as Banks means a great deal to us. The partnership will undoubtedly go a long way in supporting cancer patients in our region.’

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Charity Night In Memory Of Glenn Campbell

The family of Glenn Campbell arranged a charity night to raise funds for Bright Red, late last year.

Through a raffle, quiz, domino cards and loads more, the family raised £1,500 on the night, on top of £1,000 raised at Glenn’s funeral.

Gillian said ‘Glenn spent quite a lot of time on the wards at the Freeman hospital while fighting leukaemia, the staff were absolutely fantastic in the care and support they gave us.

We were absolutely amazed and grateful to all our friends for the funds raised at his funeral, to add even more through the social night means the world to us.’

We are so grateful to Glenn’s family for taking the time out to give something back. This is so incredibly kind and will go such a long way in our fight against blood cancer.

Picture : Glenn’s wife Gillian, his sister and two sons.

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Bright Red Help Fund New PCR Machine at Newcastle University

Our Trustees have recently awarded a grant of £6,000 to Newcastle University, helping fund a new PCR machine.

Applicant Dr Rachel Crossland explained  ‘The qRT-PCR machine is essential for critical research conducted by 5 research groups within the Institute of Cellular Medicine. These groups span across two major research themes, with the ultimate aim of understanding the way in which haematological disease impacts on patients lives, and how we can develop improved therapies to better improve patients lives. The machine will also benefit current and prospective students, supporting their training and development by allowing hands on training in the fundamental molecular technique of qRT-PCR.

We are extremely grateful to Bright Red for their continued support.’

 

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Complementary Therapy at the Northern Centre for Cancer Care

For the sixth year in a row Bright Red has provided funding to the Complementary Therapy Service at the Northern Centre for Cancer Care. The team of qualified therapists use gentle touch and relaxation techniques to achieve calming responses. These can evoke a sense of well-being which may help patients cope with some of the stresses caused by cancer and its treatment.

Every year we receive an evaluation from the team, and every year we are filled with a deep sense of pride, seeing just how valuable the service is. It is such a privilege to support such a hard working, dedicated team.

2017 Evaluation & Feedback

  • During 2017 nearly 2,670 (2,666) therapies were provided for patients in wards 33, 34, 35, 36 and the Sir Bobby Robson clinical trials unit, as well as a number of out-patients and patients attending for radiotherapy, who were particularly anxious.
  • Over 2,940 (2,942) patients received aromatherapy tissues, either alongside another therapy, or as a standalone therapy for the patients to have on the unit and to take home with them to aid relaxation. This figure continues to increase each year.
  • 100% of the surveyed patients rated the service as “10” the equivalent to excellent.
  • 100 % of the patients responded that they would recommend the service to other patients. One patient added “everyone”.
  • This much needed space is also used for anxious pre-treatment patients on the day of their treatment and by mobile in-patients who feel a short break from the ward environment would be beneficial (with ward staff approval).
  • We have also used this calming environment in collaboration with medical staff for very anxious patients who required NG Tube procedures with complementary therapy pre-procedure. Chemotherapy anticipatory nausea patients and on several occasions with the Sir Bobby Robson Team for high blood pressure (white coat syndrome) patients, which have proved very beneficial.
  • The team can now deliver improved out-patient access to the service ensuring equality to all NCCC patients.
  • Demand for the Therapy Room continues to increase each week and could eventual have its own diary if staffing and funding allowed in the future.
  • Collaboration with NCCC Physiotherapy Team has continued this year as part of their physiotherapy and occupational therapy student placement we now provide an introduction to complementary therapies within a clinical setting demonstrating how the services can work in harmony and the benefits which can be provided for patients. Feedback has been very positive and we believe we are the only directorate to offer this introduction.

‘The service really helped me at a time when I most needed it. Talking about my feelings and learning techniques to help proved invaluable.’

‘The service provides an extremely vital therapy both during and after cancer treatment’

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Donation Made In Memory Of Grandad & Grandson

For many years we have received wonderful support from a family who know the darkest side of blood cancer. Kath and Ted Phillips sadly lost their beloved son Christopher after a 5 year battle against leukaemia.

Last year the family sadly lost another member of the family, Christopher’s grandfather, George. The family decided they would like funds raised at George’s funeral to go to Bright Red.

Christine Carr, Kath’s sister, said ‘We raised £300 through a collection which was kindly donated by friends and family at our dads funeral, George Carr in November. Also in memory of much loved and missed, Christopher Phillips. This photo was taken at Christopher’s Graduation with his very proud Grandad George.

Thank you so much for your kind donations to go to this excellent charity.’

Thank you to everyone who donated, and to the family for their incredible, continued support.

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Bright Red Shop Now Live!

We regularly receive requests from our supporters to buy Bright Red hoodies or tops for events. We haven’t been able to place bulk orders for too many items. Those of you who have been in our office will know that we have no place to store anything, and with a team of two it’s difficult to find the capacity to manage something like this.

Thanks to a wonderful new partnership with Emblematic, we are now able to offer a range of branded items for sale, at a minimum cost to you!

We have just placed the first order for two Bright Red hoodies and we can’t wait to start wearing them. You can find a link to the store below!

Bright Red Store

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Ainderby Steeple CofE Primary School Choose Bright Red!

We were thrilled to learn that the students of Ainderby Steeple Church of England Primary School, in Northallerton, selected Bright Red to be their Charity of the Year.

The school has a whole host of fundraising actitivites already planned, including carol singing, pyjama days and much more!

We are really looking forward to sharing updates from the school over the next few months!

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My Brand New Ben Sherman – Original Painting by Phil Bartle

We are delighted to open bidding on a Phil Bartle, original painting called ‘ My Brand New Ben Sherman’. The print comes fully framed and would retail at around £300. It’s an unmissable opportunity to get your hands on a fantastic piece of art and help blood cancer patients in the north.

Phil said ‘This picture is about going for a night out in mid 70s Consett wearing a white shirt and before the end of the night you’re wearing a red one as it ends up covered in red dust. Even though there wasn’t a sign on the outside for ‘Sir Boutique’, I had to put one in to show it existed!’

All funds raised from the sale of the picture will go towards our Lee Robson Patient Care Grants, one off financial awards given to those in most need of assistance.

To place your bid please email Ashley, via Ashley@brightred.org.uk. Bidding is open now and will close at 5pm on Saturday 30 September. We’re hoping to raise a minimum of £250. This will mean we can not only help another family, but will take the funds raised in Lee’s memory over the £50,000 mark!

Huge thank you to Phil for his kind donation. We hope your painting finds a worthy home!

my new ben sherman

 

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Black & Decker Exceed £9,000 Fundraising Target

Over the past few years we have been blessed with the support of Black & Decker, Spennymoor. Many of their staff have taken on the challenging Ride for Red and through incredible dedication they have managed to raise an amazing £9,100 for Bright Red

We are so very grateful to all the team for their support. We can always rely on them to bring smiles and positivity to the Ride for Red and we are so grateful for all they do.

#TeamBloodBrothers

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